Ehlers-Danlos Syndrome Skin Treatment

Living with Ehlers-Danlos Syndrome (EDS) means more than just managing joint pain or fatigue. It often means facing fragile, hyperextensible skin that doesn’t heal as it should. For many people with EDS, the skin becomes a daily challenge: bruises appear easily, wounds take longer to close, and scars may form abnormally.

At Advanced Dermatology, P.C., we recognize how frustrating and delicate EDS skin issues can be.

Our board-certified dermatologists specialize in treating and protecting vulnerable skin, helping patients with EDS feel more confident and comfortable in their skin daily.

Read on to learn how we can help or schedule a consultation with a dermatologist experienced in EDS-related skin care.

What is Ehlers-Danlos Syndrome (EDS)?

Ehlers-Danlos syndrome is a group of inherited connective tissue disorders that affect the body’s collagen production, the protein responsible for skin strength, elasticity, and healing.

While EDS can involve joints, blood vessels, and other organs, one of the most visible and frustrating aspects is its impact on the skin.

Common Skin Issues Associated with EDS

People with EDS may experience a variety of medical dermatology symptoms, including:

Skin that bruises easily.
Soft, stretchy (hyperextensible) skin.
Delayed wound healing.
Thin or translucent skin, especially on the hands and chest.
Scarring that appears wide, thin, or atrophic (“cigarette paper” scars).

These symptoms are not only cosmetic. They can affect daily life, increase the risk of complications, and contribute to low self-confidence or emotional distress.

Diagnosing Skin Manifestations of Ehlers-Danlos Syndrome

Diagnosing EDS-related skin complications involves more than just looking at the surface. Our dermatologists assess:

Skin texture and elasticity.
Presence and pattern of bruising.
Type and quality of scars.
History of wound healing.
Family history or genetic diagnosis of EDS.

By combining a clinical exam with a review of your medical history, we can better understand how your EDS affects your skin and recommend targeted care.

Treatment Options for EDS Skin Complications

Because EDS skin issues are chronic and often progressive, treatment focuses on protecting the skin, minimizing injury, and managing long-term effects.

Managing Skin Fragility and Easy Bruising

Use of protective padding for common bump zones (e.g., knees, elbows).
Compression garments to support blood vessels and reduce bruising.
Gentle cleansing and moisturizing routines to strengthen the skin barrier.

Treatments for Hyperextensible Skin

While there’s no cure for stretchy skin, dermatologists can help monitor areas at risk of tearing and recommend ways to reduce mechanical stress on the skin.

Addressing Delayed Wound Healing in EDS Patients

To treat wounds effectively, we recommend:

Using non-stick dressings and hydrogel sheets.
Adhering low-tension sutures or steri-strips when needed for lacerations.
Applying topical antibiotics and collagen-promoting ointments to aid healing.

Scar Management Strategies

Scarring in Ehlers-Danlos syndrome can appear thin, stretched, or papery and often doesn’t respond well to traditional treatments.

Dermatologic management focuses on reducing the appearance of scars while protecting the surrounding fragile skin. Options to treat this condition may include:

Prescription silicone gels or sheets to flatten and fade scars.
Corticosteroid injections (in select cases) to reduce raised or thickened scarring.
Laser therapy for discoloration or scar refinement.

Our Specialized EDS Skin Care Protocols

At Advanced Dermatology, P.C., our providers are trained to treat skin that doesn’t behave like everyone else’s. With EDS, standard skin care techniques often fall short, which is why we offer:

Individualized wound care and scar management plans.
Collaboration with geneticists, rheumatologists, or vascular specialists when needed.
Long-term follow-up to monitor healing and prevent complications.
Education on how to spot skin injuries before they worsen.

We aim to protect and preserve your skin through expert care, advanced therapies, and proactive management.

Preventive Care and Daily Management for EDS Skin

Prevention is key to managing EDS-related skin issues. Even small lifestyle changes can make a meaningful impact.

Lifestyle Modifications to Protect Fragile Skin

Wear soft, long-sleeved clothing and protective gear during physical activity.
Avoid adhesive bandages or products that may tear the skin.
Keep skin moisturized to prevent cracking or tearing.
Minimize contact with harsh chemicals or environmental irritants.

Wound Care Techniques for EDS Patients

Clean wounds gently with mild, non-alcohol-based cleansers.
Apply dressings that won’t stick to fragile tissue.
Change bandages frequently to prevent infection.
Watch for signs of delayed healing or excess bleeding, and contact your dermatologist promptly.

A State-of-the-Art Approach to EDS Care

At Advanced Dermatology, P.C., we understand that managing Ehlers-Danlos syndrome goes beyond routine skin care. Our approach is rooted in compassion, expertise, and partnership. We’re here to help you take control of your skin health with a plan that’s realistic, supportive, and grounded in the latest dermatologic science.

If you’re living with EDS and dealing with fragile skin, abnormal scarring, or chronic wounds, you don’t have to navigate it alone. We’re here to support your journey.